{"id":17577,"date":"2019-11-29T20:24:51","date_gmt":"2019-11-29T19:24:51","guid":{"rendered":"http:\/\/agora.xtec.cat\/insalpicat\/?p=17577"},"modified":"2020-07-06T14:15:31","modified_gmt":"2020-07-06T12:15:31","slug":"minories-que-fan-una-majoria-la-marato-2019","status":"publish","type":"post","link":"https:\/\/agora.xtec.cat\/insalpicat\/portada\/minories-que-fan-una-majoria-la-marato-2019\/","title":{"rendered":"Minories que fan una majoria, La Marat\u00f3 2019"},"content":{"rendered":"<p style=\"text-align: justify;\">A l&#8217;ERA d&#8217;aquesta setmana l&#8217;alumnat de 1r i 2n d&#8217;ESO ha assitit a una xerrada sobre &#8220;Malalties minorit\u00e0ries&#8221;, tema de La Marat\u00f3 d&#8217;aquest any. De la m\u00e0 de la Montse Molina i l&#8217;Helena de Dios hem pogut con\u00e9ixer una mica m\u00e9s la complicada realitat dels que les pateixen. La Montse \u00e9s infermera a l&#8217;hospital Arnau de Vilanova i ens ha parlat sobre les causes, simptomatologies i tractaments de les malalties rares, aquelles que afecten entre un 6% i un 8% de la poblaci\u00f3. Es calcula que al m\u00f3n n&#8217;hi ha m\u00e9s de 7.000 i la majoria tenen una base gen\u00e8tica, afecten a diversos \u00f2rgans i sistemes del nostre cos i provoquen una discapacitat intel\u00b7lectual o f\u00edsica.<\/p>\n<p style=\"text-align: justify;\">L&#8217;Helena de Dios \u00e9s la mare de l&#8217;\u00c0frica, una preciosa nena de 4 anys afectada de M-CM (Macrocephaly-Capillary Malformation), s\u00edndrome que es distingeix per la macrocef\u00e0lia i la malformaci\u00f3 capil\u00b7lar. L&#8217;Helena \u00e9s membre tamb\u00e9 de l&#8217;<a href=\"http:\/\/amcme.es\/\" target=\"_blank\" rel=\"noopener noreferrer\">AMCME<\/a> (Asociaci\u00f3n Macrocefalia con Malformaci\u00f3n Capilar de Espa\u00f1a), entitat sense \u00e0nim de lucre que pret\u00e9n informar, assessorar i recolzar a les persones afectades i als seus familiars. Amb el seu emocionant testimoni vam poder ficar-nos en la pell del pacient afectat i de tots els que l&#8217;envolten.<\/p>\n<p style=\"text-align: justify;\">D&#8217;altra banda, l&#8217;alumnat de 2n d&#8217;ESO est\u00e0 treballant en el seu segon projecte, &#8220;Cercant Salut&#8221;, diferents malalties minorit\u00e0ries a trav\u00e9s d&#8217;un TdR (Treball de Recerca) i exposar\u00e0 les seves investigacions en una Fira solid\u00e0ria que tindr\u00e0 lloc el dia 13 de desembre a la Sala La Uni\u00f3 d&#8217;11:00h a 13:30h. Us hi esperem!<\/p>\n<div class=\"field field-name-title-field field-type-text field-label-hidden\">\n<div class=\"field-items\">\n<div class=\"field-item even\"><\/div>\n<\/div>\n<\/div>\n<p style=\"text-align: left;\">\r\n\t<div class=\"slideshow_container slideshow_container_style-light\" style=\"height: 500px; \" data-slideshow-id=\"17584\" data-style-name=\"style-light\" data-style-version=\"2.3.1\" >\r\n\r\n\t\t\t\t\t<div class=\"slideshow_loading_icon\"><\/div>\r\n\t\t\r\n\t\t<div class=\"slideshow_content\" style=\"display: none;\">\r\n\r\n\t\t\t<div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/insalpicat\/wp-content\/uploads\/usu743\/2019\/12\/AMCME.jpg\" alt=\"AMCME\" width=\"800\" height=\"400\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">AMCME<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/insalpicat\/wp-content\/uploads\/usu743\/2019\/12\/IMG_20191129_1405262.jpg\" alt=\"IMG_20191129_140526~2\" width=\"3785\" height=\"2049\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20191129_140526~2<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/insalpicat\/wp-content\/uploads\/usu743\/2019\/12\/IMG_20191129_1410052.jpg\" alt=\"IMG_20191129_141005~2\" width=\"3697\" height=\"2080\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20191129_141005~2<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/insalpicat\/wp-content\/uploads\/usu743\/2019\/12\/IMG_20191129_1410152.jpg\" alt=\"IMG_20191129_141015~2\" width=\"3872\" height=\"2178\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20191129_141015~2<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/insalpicat\/wp-content\/uploads\/usu743\/2019\/12\/IMG_20191129_133131.jpg\" alt=\"IMG_20191129_133131\" width=\"3000\" height=\"1688\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20191129_133131<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/insalpicat\/wp-content\/uploads\/usu743\/2019\/12\/IMG_20191129_1330302.jpg\" alt=\"IMG_20191129_133030~2\" width=\"2720\" height=\"1531\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20191129_133030~2<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: 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class=\"slideshow_button slideshow_next slideshow_transparent\" role=\"button\" data-next-text=\"Seg\u00fcent\" style=\"display: none;\"><\/div>\r\n\r\n\t\t<div class=\"slideshow_pagination\" style=\"display: none;\" data-go-to-text=\"V\u00e9s a la diapositiva\"><div class=\"slideshow_pagination_center\"><\/div><\/div>\r\n\r\n\t\t<!-- WordPress Slideshow Version 2.3.1 -->\r\n\r\n\t\t\t<\/div>\r\n\r\n<\/p>\n<p>&nbsp;<\/p>\n<p><iframe loading=\"lazy\" src=\"\/\/www.youtube.com\/embed\/XWrht3nyl2w\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Xerrada sobre la Marat\u00f3 2019&hellip;  <a href=\"https:\/\/agora.xtec.cat\/insalpicat\/portada\/minories-que-fan-una-majoria-la-marato-2019\/\" title=\"Read Minories que fan una majoria, La Marat\u00f3 2019\">Llegeix m\u00e9s\u00bb<\/a><\/p>\n","protected":false},"author":1,"featured_media":17578,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"footnotes":""},"categories":[141,102,123,29],"tags":[],"class_list":["post-17577","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-curs-2019-2020","category-era","category-activitats","category-portada"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/posts\/17577","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/comments?post=17577"}],"version-history":[{"count":3,"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/posts\/17577\/revisions"}],"predecessor-version":[{"id":17716,"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/posts\/17577\/revisions\/17716"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/media\/17578"}],"wp:attachment":[{"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/media?parent=17577"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/categories?post=17577"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/agora.xtec.cat\/insalpicat\/wp-json\/wp\/v2\/tags?post=17577"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}