{"id":15102,"date":"2025-11-30T22:23:39","date_gmt":"2025-11-30T21:23:39","guid":{"rendered":"https:\/\/agora.xtec.cat\/iesserrallarga\/?p=15102"},"modified":"2026-02-23T18:05:24","modified_gmt":"2026-02-23T17:05:24","slug":"xerrades-de-conscienciacio-sobre-la-leucodistrofia","status":"publish","type":"post","link":"https:\/\/agora.xtec.cat\/iesserrallarga\/general\/xerrades-de-conscienciacio-sobre-la-leucodistrofia\/","title":{"rendered":"Xerrades de conscienciaci\u00f3 sobre la leucodistr\u00f2fia"},"content":{"rendered":"

Aquesta setmana hem realitzat les dues xerrades que ens han ajudat a entendre qu\u00e8 \u00e9s la leucodistr\u00f2fia i com afecta els infants i les seves fam\u00edlies. Despr\u00e9s de les explicacions, els nostres alumnes han pogut conversar i plantejar preguntes a les dues psic\u00f2logues de l\u2019associaci\u00f3 ELA Espanya, la Kiara i la Giselle. Ha estat un moment ric i proper, que ha enc\u00e8s curiositats i ha obert mirades.<\/p>\n

Hem presentat tamb\u00e9 la nostra iniciativa Postals amb Cor, ja que aquest desembre enviarem postals de Nadal plenes d\u2019afecte a les fam\u00edlies que conviuen amb nens i nenes afectats amb aquesta malaltia minorit\u00e0ria.<\/p>\n

Ens han informat tamb\u00e9 de la Iniciativa Legislativa Popular de\u00a0FEDER<\/a>, que reclama un cribratge neonatal igual a totes les comunitats aut\u00f2nomes, assegurant les mateixes proves de detecci\u00f3 preco\u00e7 per a tots els nadons.\u00a0 Animem totes les fam\u00edlies del centre a visitar la p\u00e0gina web de la iniciativa i\u00a0signar el document<\/a>\u00a0de suport, un gest senzill que pot ajudar a fer avan\u00e7ar aquesta reivindicaci\u00f3 tan necess\u00e0ria.<\/p>\n

Gr\u00e0cies,\u00a0 Kiara i Giselle, per compartir aquest cam\u00ed de sensibilitat i solidaritat amb nosaltres.<\/p>\n

\"\"<\/a><\/p>\n

\"\"<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Aquesta setmana hem realitzat les dues xerrades que ens han ajudat a entendre qu\u00e8 \u00e9s la leucodistr\u00f2fia i com afecta els infants i les seves fam\u00edlies. Despr\u00e9s de les explicacions, els nostres alumnes han pogut conversar i plantejar preguntes a les dues psic\u00f2logues de l\u2019associaci\u00f3… Llegeix m\u00e9s\u00bb<\/a><\/p>\n","protected":false},"author":1,"featured_media":15103,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"footnotes":""},"categories":[3,5,1,57,29],"tags":[],"class_list":["post-15102","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-eso","category-eso-2","category-general","category-informacio","category-portada"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/posts\/15102","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/comments?post=15102"}],"version-history":[{"count":3,"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/posts\/15102\/revisions"}],"predecessor-version":[{"id":15107,"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/posts\/15102\/revisions\/15107"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/media\/15103"}],"wp:attachment":[{"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/media?parent=15102"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/categories?post=15102"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/agora.xtec.cat\/iesserrallarga\/wp-json\/wp\/v2\/tags?post=15102"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}