{"id":4963,"date":"2022-03-01T15:07:52","date_gmt":"2022-03-01T14:07:52","guid":{"rendered":"https:\/\/agora.xtec.cat\/iespedrol\/?p=4963"},"modified":"2022-03-05T15:08:51","modified_gmt":"2022-03-05T14:08:51","slug":"un-cas-duna-malaltia-rara-la-glucogenosi","status":"publish","type":"post","link":"https:\/\/agora.xtec.cat\/iespedrol\/general\/un-cas-duna-malaltia-rara-la-glucogenosi\/","title":{"rendered":"Un cas d&#8217;una malaltia rara: La Glucogenosi"},"content":{"rendered":"<p>Els passats 1 i 2 de mar\u00e7, a l&#8217;assignatura de Cultura i Valors \u00c8tics de 3r de l&#8217;ESO A i B, ha vingut en Juan Diego, membre de l&#8217;Associaci\u00f3 Espanyola de Malalts de Glicogenosi i alhora portador de la malaltia que ha patit des de ben petit.<\/p>\n<p>En Juan Diego s&#8217;ha dedicat a explicar una mica el seu cas als alumnes, que ja portaven un parell de setmanes cercant informaci\u00f3 sobre la malaltia, i com l&#8217;afecta en el seu dia a dia. Tamb\u00e9 ha respost algunes de les preguntes dels alumnes que han fet al final de la seva xerrada.<\/p>\n<p>Aix\u00ed mateix, en Juan Diego ens anima a tots nosaltres a donar suport perqu\u00e8 les administracions p\u00fabliques i privades dediquin esfor\u00e7os i inversions per a investigar m\u00e9s i trobar potser una cura a aquesta malaltia rara, aix\u00ed com les moltes d&#8217;altres que malauradament existeixen i pateixen moltes persones del nostre pa\u00eds.<\/p>\n<p>Anima tamb\u00e9 a visitar la web de la seva associaci\u00f3 per si voleu m\u00e9s informaci\u00f3 o coneixeu d&#8217;alg\u00fa a qui podria ajudar: https:\/\/www.glucogenosis.org\/<\/p>\n<p style=\"text-align: center;\">\r\n\t<div class=\"slideshow_container slideshow_container_slideshow-jquery-image-gallery-custom-styles_1\" style=\" max-width: 450px;\" data-slideshow-id=\"4964\" data-style-name=\"slideshow-jquery-image-gallery-custom-styles_1\" data-style-version=\"1537298100\" >\r\n\r\n\t\t\t\t\t<div class=\"slideshow_loading_icon\"><\/div>\r\n\t\t\r\n\t\t<div class=\"slideshow_content\" style=\"display: none;\">\r\n\r\n\t\t\t<div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/iespedrol\/wp-content\/uploads\/usu155\/2022\/03\/IMG_20220302_105216-Jorge-Torres-1-scaled.jpg\" alt=\"IMG_20220302_105216 - Jorge Torres\" width=\"2560\" height=\"1920\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20220302_105216 - Jorge Torres<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/iespedrol\/wp-content\/uploads\/usu155\/2022\/03\/IMG_20220302_104202-Jorge-Torres-1-scaled.jpg\" alt=\"IMG_20220302_104202 - Jorge Torres\" width=\"2560\" height=\"1920\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20220302_104202 - Jorge Torres<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/iespedrol\/wp-content\/uploads\/usu155\/2022\/03\/IMG_20220301_133723-Jorge-Torres-scaled.jpg\" alt=\"IMG_20220301_133723 - Jorge Torres\" width=\"2560\" height=\"1920\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20220301_133723 - Jorge Torres<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/iespedrol\/wp-content\/uploads\/usu155\/2022\/03\/IMG_20220301_125738-Jorge-Torres-1-scaled.jpg\" alt=\"IMG_20220301_125738 - Jorge Torres\" width=\"2560\" height=\"1920\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20220301_125738 - Jorge Torres<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/iespedrol\/wp-content\/uploads\/usu155\/2022\/03\/IMG_20220301_125421-Jorge-Torres-scaled.jpg\" alt=\"IMG_20220301_125421 - Jorge Torres\" width=\"2560\" height=\"1920\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20220301_125421 - Jorge Torres<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/iespedrol\/wp-content\/uploads\/usu155\/2022\/03\/iloveimg-compressed-7.zip\" alt=\"iloveimg-compressed (7)\"   \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">iloveimg-compressed (7)<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/iespedrol\/wp-content\/uploads\/usu155\/2022\/03\/IMG_20220302_105216-Jorge-Torres-scaled.jpg\" alt=\"IMG_20220302_105216 - Jorge Torres\" width=\"2560\" height=\"1920\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20220302_105216 - Jorge Torres<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/iespedrol\/wp-content\/uploads\/usu155\/2022\/03\/IMG_20220302_104202-Jorge-Torres-scaled.jpg\" alt=\"IMG_20220302_104202 - Jorge Torres\" width=\"2560\" height=\"1920\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20220302_104202 - Jorge Torres<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div><div class=\"slideshow_view\">\r\n\t\t\t\t<div class=\"slideshow_slide slideshow_slide_image\">\r\n\t\t\t\t\t\t\t\t\t\t\t<img src=\"https:\/\/agora.xtec.cat\/iespedrol\/wp-content\/uploads\/usu155\/2022\/03\/IMG_20220301_125738-Jorge-Torres-scaled.jpg\" alt=\"IMG_20220301_125738 - Jorge Torres\" width=\"2560\" height=\"1920\" \/>\r\n\t\t\t\t\t\t\t\t\t\t<div class=\"slideshow_description_box slideshow_transparent\">\r\n\t\t\t\t\t\t<div class=\"slideshow_title\">IMG_20220301_125738 - Jorge Torres<\/div>\t\t\t\t\t\t\t\t\t\t\t<\/div>\r\n\t\t\t\t<\/div>\r\n\r\n\t\t\t\t\t\t<div style=\"clear: both;\"><\/div><\/div>\r\n\t\t<\/div>\r\n\r\n\t\t<div class=\"slideshow_controlPanel slideshow_transparent\" style=\"display: none;\"><ul><li class=\"slideshow_togglePlay\" data-play-text=\"Visualitza\" data-pause-text=\"Pausa\"><\/li><\/ul><\/div>\r\n\r\n\t\t<div class=\"slideshow_button slideshow_previous slideshow_transparent\" role=\"button\" data-previous-text=\"Anterior\" style=\"display: none;\"><\/div>\r\n\t\t<div class=\"slideshow_button slideshow_next slideshow_transparent\" role=\"button\" data-next-text=\"Seg\u00fcent\" style=\"display: none;\"><\/div>\r\n\r\n\t\t<div class=\"slideshow_pagination\" style=\"display: none;\" data-go-to-text=\"V\u00e9s a la diapositiva\"><div class=\"slideshow_pagination_center\"><\/div><\/div>\r\n\r\n\t\t<!-- WordPress Slideshow Version 2.3.1 -->\r\n\r\n\t\t\t<\/div>\r\n\r\n<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Els passats 1 i 2 de mar\u00e7, a l&#8217;assignatura de Cultura i Valors \u00c8tics de 3r de l&#8217;ESO A i B, ha vingut en Juan Diego, membre de l&#8217;Associaci\u00f3 Espanyola de Malalts de Glicogenosi i alhora portador de la malaltia que ha patit des de ben petit. En Juan Diego s&#8217;ha dedicat a explicar una [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":4971,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[68,6,1,29],"tags":[],"class_list":["post-4963","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ciencies-socials","category-eso-3","category-general","category-portada"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/posts\/4963","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/comments?post=4963"}],"version-history":[{"count":2,"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/posts\/4963\/revisions"}],"predecessor-version":[{"id":4975,"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/posts\/4963\/revisions\/4975"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/media\/4971"}],"wp:attachment":[{"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/media?parent=4963"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/categories?post=4963"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/agora.xtec.cat\/iespedrol\/wp-json\/wp\/v2\/tags?post=4963"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}