En un to molt ser\u00e9, clar i emotiu, la Maria Ester, ens va explicar com han viscut ( ella i la seva fam\u00edlia) tots aquests esdeveniments durant tots aquests anys amb l’Eul\u00e0lia. Ens va aportar informaci\u00f3 sobre aquesta s\u00edndrome, que va crear ella en una\u00a0web, etc. Ens va detallar com l’Eul\u00e0lia no pot moure cap part del seu cos per\u00f2 s\u00ed que pot riure, plorar, emocionar-se, com es poden comunicar mare i filla nom\u00e9s amb el pensament i la mirada, que l’Eul\u00e0lia t\u00e9 l’o\u00efda molt fina i respon molt b\u00e9 a all\u00f2 que li agrada escoltar: paraules boniques, la m\u00fasica, que li encanta… Tamb\u00e9 ens va explicar\u00a0els moments m\u00e9s dif\u00edcils de la malaltia, el dia a dia…,\u00a0 per\u00f2 sobretot, tota la consci\u00e8ncia i la\u00a0llum que els ha aportat i els aporta a tota la fam\u00edlia tenir, conviure i cuidar de l\u00b4Eul\u00e0lia.<\/p>\n
Durant tot aquest proc\u00e9s, la Maria Ester va confeccionar una p\u00e0gina web que va titular “plou i fa sol” on explica moltes coses del dia a dia, de les adaptacions que van haver de fer per a poder cuidar b\u00e9 l’Eul\u00e0lia, llibres, experi\u00e8ncies, dels sentiments…, que podeu visitar a\u00a0http:\/\/www.xtec.cat\/~ Des de fa uns anys, l’Eul\u00e0lia assisteix al centre-escola ” la Muntanyeta”, gestionada per l’Associaci\u00f3 provincial de Par\u00e0lisi Cerebral de Tarragona. M\u00e9s informaci\u00f3\u00a0 \u00a0http:\/\/www.appctarragona. <\/p>\n Val a dir, per acabar, que les alumnes es van mostrar molt interessades (i algunes, fins i tot, emocionades) en escoltar aquesta viv\u00e8ncia d’una mare ( i professora d\u00b4ESO ) de primer\u00e0 m\u00e0 i li van fer tot de preguntes. Aix\u00f2\u00a0 encoratja el professorat a programar m\u00e9s xerrades i fer m\u00e9s\u00a0sortides per con\u00e8ixer de primera m\u00e0 en qu\u00e8 consistir\u00e0 la seva futura feina en relaci\u00f3 amb l’atenci\u00f3 a la depend\u00e8ncia.<\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" El passat dilluns 8 d’octubre, els alumnes de 1r Cicle Mitj\u00e0 de depend\u00e8ncia van tenir una xerrada a c\u00e0rrec de la Maria Ester Salvat que els va parlar de la seva viv\u00e8ncia-experi\u00e8ncia com a mare de la seva filla Eul\u00e0lia. L’Eul\u00e0lia, que ara t\u00e9 gaireb\u00e9 18 anys, va n\u00e9ixer amb una s\u00edndrome desconeguda que […]<\/p>\n","protected":false},"author":9,"featured_media":5966,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center 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