{"id":4070,"date":"2020-12-01T15:09:53","date_gmt":"2020-12-01T14:09:53","guid":{"rendered":"http:\/\/agora.xtec.cat\/ie-pidelburgar\/?p=4070"},"modified":"2020-12-16T15:58:28","modified_gmt":"2020-12-16T14:58:28","slug":"mou-te-per-la-investigacio-mou-te-pel-colagen-vi","status":"publish","type":"post","link":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/general\/mou-te-per-la-investigacio-mou-te-pel-colagen-vi\/","title":{"rendered":"Mou-te per la investigaci\u00f3, mou-te pel col\u00b7lagen VI"},"content":{"rendered":"

El passat dijous 26 de novembre coincidint amb el treball de repte en el que s\u2019havia de treballar el cartell publicitari. L\u2019Ariadna Mas ens en va portar un.\u00a0<\/span><\/p>\n

A continuaci\u00f3 adjuntem la seva exposici\u00f3 i explicaci\u00f3 del cartell:<\/span><\/p>\n

\"\"<\/p>\n

\u201cBona tarda, em dic Ariadna Mas i tinc un germ\u00e0 que es diu Roger que fa 2on de prim\u00e0ria. El meu germ\u00e0 t\u00e9 una malaltia que es diu Distr\u00f2fia muscular cong\u00e8nita per d\u00e8ficit de col\u00b7lagen VI. Aquesta malaltia \u00e9s molt greu i actualment no t\u00e9 cura. Afecta als m\u00fasculs i fa que el meu germ\u00e0 Roger no pugui caminar, ni c\u00f3rrer ni fer vida normal com els altres nens. \"\"<\/span><\/p>\n

La fundaci\u00f3 Noelia<\/strong> \u00e9s la que investiga la cura de la malaltia del Roger, i cada any organitzem concerts o activitats per tal de recaudar diners per a la investigaci\u00f3. Aquest any per culpa de la Covid no ho podem fer, aix\u00ed que hem organitzat un repte per tal de poder fer igualment la recaptaci\u00f3.\u00a0<\/span><\/p>\n

Aquesta malaltia s\u2019investiga en un hospital de Barcelona i en un de Maryland a Estats Units, entre aquestes dues ciutats hi ha 6.500 quil\u00f2metres<\/strong> i s\u2019ha marcat l\u2019objectiu d\u2019aconseguir 6.500 euros,<\/strong> un euro per quil\u00f2metre recorregut. Per tal de poder recaptar aquests diners hem fet unes samarretes que valen 12 euros, i qui vulgui col\u00b7laborar ho pot fer comprant-les i fent-se una foto que haur\u00e0 de penjar a les xarxes socials entre els dies 9 i 16 de desembre amb el hastag #Mueveteporelcol\u00e1genoVI.\u00a0<\/span><\/p>\n

La fundaci\u00f3 del Banc Mediolanum patrocina aquesta activitat i si aconseguim arribar als 2.000 euros, aquest banc ens doblar\u00e0 el capital aconseguit<\/strong>. Aix\u00ed doncs, per cada aportaci\u00f3 de 12 euros que es faci, aquesta fundaci\u00f3 en destinar\u00e0 12 m\u00e9s a la investigaci\u00f3.<\/span><\/p>\n

La meva fam\u00edlia i jo us estarem molt agra\u00efts si participeu per ajudar a buscar la cura a la malaltia<\/span><\/p>\n

\u00a0del meu germ\u00e0 Roger\u201d.<\/span>\"\"<\/p>\n","protected":false},"excerpt":{"rendered":"

La fundaci\u00f3 Noelia \u00e9s la que investiga la cura de la malaltia del Roger, i cada any organitzem concerts o activitats per tal de recaudar diners per a la investigaci\u00f3. Aquest any per culpa de la Covid no ho podem fer, aix\u00ed que hem organitzat un repte per tal de poder fer igualment la recaptaci\u00f3.\u00a0… Llegeix m\u00e9s\u00bb<\/a><\/p>\n","protected":false},"author":1,"featured_media":4068,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"footnotes":""},"categories":[30,195,1,164,167],"tags":[],"class_list":["post-4070","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-primaria","category-eso","category-general","category-pagina-dinici","category-portada"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/posts\/4070","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/comments?post=4070"}],"version-history":[{"count":4,"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/posts\/4070\/revisions"}],"predecessor-version":[{"id":4193,"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/posts\/4070\/revisions\/4193"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/media\/4068"}],"wp:attachment":[{"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/media?parent=4070"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/categories?post=4070"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/agora.xtec.cat\/ie-pidelburgar\/wp-json\/wp\/v2\/tags?post=4070"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}