{"id":6012,"date":"2019-12-04T13:45:01","date_gmt":"2019-12-04T12:45:01","guid":{"rendered":"http:\/\/www.escagustibartra.cat\/?p=6012"},"modified":"2019-12-04T13:45:01","modified_gmt":"2019-12-04T12:45:01","slug":"lescola-collabora-amb-la-marato-de-tv3","status":"publish","type":"post","link":"https:\/\/agora.xtec.cat\/escagustibartra\/escola\/lescola-collabora-amb-la-marato-de-tv3\/","title":{"rendered":"L’escola col\u00b7labora amb la Marat\u00f3 de TV3"},"content":{"rendered":"

El proper diumenge dia 15 de desembre tindr\u00e0 lloc la 28\u00aa edici\u00f3 de la Marat\u00f3 de TV3. Aquest any la Marat\u00f3 de TV3 est\u00e0 dedicada a recaptar fons per a la investigaci\u00f3 de les malalties minorit\u00e0ries.<\/p>\n

Qu\u00e8 s\u00f3n les malalties minorit\u00e0ries?<\/strong><\/p>\n

Les malalties minorit\u00e0ries s\u00f3n patologies molt poc freq\u00fcents que afecten un m\u00e0xim de 5 persones per cada 10.000. Actualment, n\u2019hi ha descrites unes 7.000 i al voltant del 80% s\u00f3n d\u2019origen gen\u00e8tic. Inclouen un conjunt de malalties molt diferents entre s\u00ed, per\u00f2 tenen en com\u00fa que acostumen a ser greus, cr\u00f2niques, progressives i discapacitants. A Catalunya, es calcula que hi ha 400.000 persones amb una malaltia rara.
\nCom que s\u00f3n tan desconegudes, poc freq\u00fcents i nombroses, sovint el diagn\u00f2stic correcte triga anys a arribar. Un cop diagnosticats, el 40% dels pacients no tenen tractament.
\nSegons els experts, dos dels objectius m\u00e9s urgents de la recerca en malalties minorit\u00e0ries s\u00f3n les proves per detectar-les en el moment de n\u00e9ixer i els tractaments eficients i segurs, com la ter\u00e0pia g\u00e8nica, que s\u2019ha desenvolupat molt en els darrers anys. Els recursos recaptats per La Marat\u00f3 2019 contribuiran a impulsar aquests i altres objectius de la recerca.<\/p>\n

Com col\u00b7laborar\u00e0 l’escola amb la Marat\u00f3 de TV3?<\/strong><\/p>\n

A partir del proper dimarts dia 10 de desembre i durant tota la setmana, alumnat de cicle superior vendr\u00e0 pastissos a les hores d’entrada i sortida de l’escola. Aquests pastissos seran elaborats per les seves fam\u00edlies.<\/p>\n

Tots els diners recollits amb la venda dels pastissos seran entregats a la Marat\u00f3 de TV3.<\/p>\n

Us animem a passar per la paradeta de pastissos que hi haur\u00e0 a l’entrada principal de l’escola per adquirir els esmorzars i els berenars dels vostres fills\/es durant aquesta setmana.<\/p>\n

\"\"<\/a><\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

El proper diumenge dia 15 de desembre tindr\u00e0 lloc la 28\u00aa edici\u00f3 de la Marat\u00f3 de TV3. Aquest any la Marat\u00f3 de TV3 est\u00e0 dedicada a recaptar fons per a la investigaci\u00f3 de les malalties minorit\u00e0ries. Qu\u00e8 s\u00f3n les malalties minorit\u00e0ries? Les malalties minorit\u00e0ries s\u00f3n patologies molt poc freq\u00fcents que afecten un m\u00e0xim de 5 […]<\/p>\n","protected":false},"author":1,"featured_media":6013,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[86],"tags":[],"class_list":["post-6012","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-escola"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/posts\/6012","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/comments?post=6012"}],"version-history":[{"count":0,"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/posts\/6012\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/media\/6013"}],"wp:attachment":[{"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/media?parent=6012"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/categories?post=6012"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/agora.xtec.cat\/escagustibartra\/wp-json\/wp\/v2\/tags?post=6012"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}