{"id":5914,"date":"2019-11-29T10:23:53","date_gmt":"2019-11-29T09:23:53","guid":{"rendered":"http:\/\/agora.xtec.cat\/ceiprellinars\/?p=5914"},"modified":"2026-02-03T19:14:57","modified_gmt":"2026-02-03T18:14:57","slug":"minories-que-fan-un-majoria","status":"publish","type":"post","link":"https:\/\/agora.xtec.cat\/ceiprellinars\/actualitat\/minories-que-fan-un-majoria\/","title":{"rendered":"MINORIES QUE FAN UN MAJORIA"},"content":{"rendered":"<p>A classe estem fent un projecte del llibre Wonder, on el seu protagonista, l&#8217;August, t\u00e9 el s\u00edndrome de Treacher Collins, una malaltia minorit\u00e0ria que fa que tingui una malformaci\u00f3 a la cara, i a causa del seu aspecte t\u00e9 problemes amb la gent, a l&#8217;escola, &#8230;<\/p>\n<p>Ahir al bibliob\u00fas vam trobar prospectes de la Marat\u00f3 de tv3 d&#8217;aquest any, i vam veure la relaci\u00f3 entre el tema de la Marat\u00f3 i Wonder. Per aix\u00f2, ho estem parlant a l&#8217;aula avui.<\/p>\n<p>Com que ens ha costat molt entendre el d\u00edptic informatiu de la Marat\u00f3 us el volem explicar a la nostra manera, per fer-ho m\u00e9s f\u00e0cil.<\/p>\n<p><strong>MINORIES QUE FAN UNA MAJORIA<\/strong><\/p>\n<p>La Marat\u00f3 d&#8217;aquest any tracta de malalties MINORIT\u00c0RIES, \u00e9s a dir, malalties que tenen molt poca gent. Cada malaltia d&#8217;aquestes la tenen <strong>5 de cada 10.000 persones<\/strong>.<\/p>\n<p>En total hi ha <strong>7.000 malalties diferents.<\/strong><\/p>\n<p><strong>Si ajuntem els afectats de cada malaltia minorit\u00e0ria dona 400.000 persones en tot Catalunya, i aix\u00f2 ja son moltes persones.<\/strong><\/p>\n<p>Aquestes malalties son malalties greus (no com un constipat), son cr\u00f2niques (per sempre), progressives (que cada cop van a pitjor) i discapacitants (que impedeixen fer vida normal). La majoria son gen\u00e8tiques i per tant, es tenen des del naixement.<\/p>\n<p>La Marat\u00f3 de tv3 vol destinar tots els diners d&#8217;aquest any per a que es pugui investigar millor, i ajudar a tenir una cura o com a m\u00ednim poder millorar la vida d&#8217;aquestes persones.<\/p>\n<p>&nbsp;<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/statics.ccma.cat\/multimedia\/png\/5\/1\/1568897143015.png\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A classe estem fent un projecte del llibre Wonder, on el seu protagonista, l&#8217;August, t\u00e9 el s\u00edndrome de Treacher Collins, una malaltia minorit\u00e0ria que fa que tingui una malformaci\u00f3 a la cara, i a causa del seu aspecte t\u00e9 problemes amb la gent, a l&#8217;escola, &#8230; Ahir al bibliob\u00fas vam trobar prospectes de la Marat\u00f3 [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5915,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center 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