{"id":11655,"date":"2022-05-08T18:19:02","date_gmt":"2022-05-08T16:19:02","guid":{"rendered":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/?p=11655"},"modified":"2022-05-08T18:21:08","modified_gmt":"2022-05-08T16:21:08","slug":"conferencies-a-6e-b-sobre-el-sindrome-de-dravet","status":"publish","type":"post","link":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/comunitat-de-grans\/conferencies-a-6e-b-sobre-el-sindrome-de-dravet\/","title":{"rendered":"Confer\u00e8ncies a 6\u00e8 B sobre el S\u00edndrome de Dravet"},"content":{"rendered":"

\"\" <\/a>\"\"<\/a><\/p>\n

La cooperativa Team R.O.S.Q.U.I. formada pels nois i noies de 6\u00e8 B\u00a0 va decidir donar el beneficis del seu treball a la investigaci\u00f3 per lluitar contra el S\u00edndrome de Dravet.<\/p>\n

El divendres al mat\u00ed, vam gaudir de les explicacions de la Raquel, mare d’una nena amb S\u00edndrome de Dravet, sobre la visi\u00f3 dels familiars i cuidadors dels nens i nenes que pateixen aquesta malaltia.<\/p>\n

A la tarda, van mantenir una videoconfer\u00e8ncia amb el Dr. Luis Miguel Aras que des de Donostia ens va aportar la visi\u00f3 m\u00e8dica sobre la malaltia i tamb\u00e9 la personal; ja que tamb\u00e9 \u00e9s pare d’una noia amb aquest s\u00edndrome.<\/p>\n

Aquestes confer\u00e8ncies ens han ajudat a saber com \u00e9s la malaltia, com afecta als pacients i als familiars. Tamb\u00e9, ens ha servit per saber on anir\u00e0 destinat el nostre esfor\u00e7. Ha sigut molt formador!<\/p>\n

\u00a0<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

La cooperativa Team R.O.S.Q.U.I. formada pels nois i noies de 6\u00e8 B\u00a0 va decidir donar el beneficis del seu treball a la investigaci\u00f3 per lluitar contra el S\u00edndrome de Dravet. El divendres al mat\u00ed, vam gaudir de les explicacions de la Raquel, mare d’una nena amb S\u00edndrome de Dravet, sobre la visi\u00f3 dels familiars i […]<\/p>\n","protected":false},"author":6,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[330,317],"tags":[],"class_list":["post-11655","post","type-post","status-publish","format-standard","hentry","category-6e-comunitat-de-grans","category-comunitat-de-grans"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/posts\/11655","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/comments?post=11655"}],"version-history":[{"count":3,"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/posts\/11655\/revisions"}],"predecessor-version":[{"id":11660,"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/posts\/11655\/revisions\/11660"}],"wp:attachment":[{"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/media?parent=11655"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/categories?post=11655"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/agora.xtec.cat\/ceip-espriu-sfeliu\/wp-json\/wp\/v2\/tags?post=11655"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}